sometimes i feel like people forget autism is a disability. and that’s not a bad thing! i’m all for disability acceptance, im proud of my disabilities. but i feel like we forget autism can hurt.
it hurts that i have to put more time and energy into socializing than others.
it hurts when i need to move so bad, usually cause im overwhelmed by either my surroundings or emotions, that i thrash and hurt myself.
it hurts that i cant be in places that are too loud or too bright, which on bad days can be as simple as a small, quiet noise or dim lights.
it hurts that i struggle to tell when im hungry, thirsty, tired, etc. so i can’t properly take care of myself. it doesn’t help my insomnia and i get very nauseas and get UTIs.
i 100% believe in autism acceptance. i don’t want a cure. but i also want us the acknowledge that it can hurt. it doesn’t mean my entire life will hurt, but some parts will. and i want a community where we can see both sides, see the hurt, and celebrate it anyway.
Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”
You’re still chronically ill if you have a good day. You’re still valid. Your chronic illness is still valid if you have one good day out of a hundred bad days.
being chronically ill with fluctuating symptoms is so annoying because when it's at it's worst im like "okay i desperately need some type of mobility aid right now, i haven't been able to leave my house in days" but then i'm able to go for a walk one day and suddenly i feel like im exaggerating my symptoms and that i actually can walk fine and it would just be embarrassing and pointless to ask for a mobility aid assessment
but like ... not struggling as much one day doesn't take away from the days that i struggle the most
our pain is valid even when it's not at it's worst and we deserve the accommodations we need even if we don't always need them at all times
i love you autistics who can't control their volume . i love you autistics who struggled with/never understood "inside voice" . i love you autistics that yell to communicate their wants and needs . i love you autistics that stim loudly . i love you autistics who make noise .
we are loved . we deserve to be heard and accommodated for .
you’re not a failure, you’re sick.
you were putting just as much effort forward before you were sick as you are now, you just have less energy to use so the results aren’t as exciting. it’s not complacency if you’re putting forward an effort.
it’s normal for your work life to suffer when your personal life does. you’re not a robot, you’re still a person, it’s unrealistic of you to expect yourself to be able to compartmentalize your symptoms at work. your body doesn’t care where you are or who’s time you’re on and it’s okay.
if all you can do is maintain your responsibilities, that is enough. you are probably not going to get fired if all you’re doing is what’s on your job description. it’s okay that you can’t put anything extra forward to grow. you’re growing in other ways right now.
even if you lose your job, you’re still not a failure. you’re not defined by the fruits of your labor, but by the substance of your heart and you are still that same career driven person who worked so hard in that position in the first place.
the reason why you’re successful isn’t because of what you’ve done, but who you are. take pride in your talent, motivation, knowledge, intelligence, and grit. that’s where your value lies.
seeing people my age talk about how scared they are of memory loss, which they only associate with old age, is so surreal to see as a 24 year old who has actively experienced memory loss for a long time now
there are causes for memory loss besides dementia and alzheimer’s, i hope y’all know that. dissociative disorders, trauma, brain injuries, thyroid problems, even just stress and lack of sleep can fuck up your ability to store, process, and access memory. and that’s just a few of the many causes i can think of off the top of my head right now.
please stop treating disabled people like some scary “other” that you might become only in the distant, decades-away future. we are your age, too. you may become one of us sooner than you know. stop acting like memory loss marks the end of a life, when so many of us have so much living left to do!
"All autistics have low empathy" - This statement is wrong.
"Autistics having low empathy is a MYTH, we actually have HIGH empathy!" - This statement is ALSO wrong.
Autistics can have low empathy, they can have high empathy, they can have learned empathy. The myth would be that all autistics only experience one end of the empathy spectrum.
In spreading around misinformation that autistics actually have high empathy, you are disregarding the autistics who do have low empathy. And vice versa.
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While doing chores/moving around, if you start to get really warm, put ice packs in your pockets, 10/10
Drink lots of ice water, but not all at once, your body might freak a little and go nauseous
Have a large amount of tank tops in various colors, when you go out and have to look a bit more formal, use a cardigan/very thin jacket so you always have the option to take it off
Spray bottles on mist form <3
Sometimes resting, or laying down, helps to cool off cause you're not using energy
Keep your bare feet on the cool tile/wood/etc. as often as possible
Bowl of ice in front of a fan works weirdly well
Popsicles, but make sure they're not high in sugar/dairy/etc. because those can make it worse
I know it would seem like tiny tight clothes would be best, but make sure your clothes aren't tight, you don't have to wear long flowing capes and gowns but having shorts that are cotton/loose are always much better.
The backs of your arms (the upper half) your feet, and your knees are often colder than the rest of your body, utilize that
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Autistic people’s relationship with sex is treated so horribly in so many different ways it’s genuinely fucking frustrating. Whenever a character is depicted with autistic traits a thousand weirdos manifest into existence to say that their cute little autism blorbo “doesn’t know what sex is and must be protected” but over in real kink circles with high populations of autistic people (furry porn and shit) they suddenly become the crazy degenerate perverts. To the greater society at large autistic people expressing their sexuality aren’t allowed to be considered normal, we either have to be sterile and nonexistent or a group of freaky sexual deviants. Give me a fucking break dude.
if heat makes you flare up, GO DRINK WATER
if your meds lower your heat tolerance, GO DRINK WATER
if none of the above apply to you but youre still suffering through a heat wave GO DRINK WATER RIGHT NOW
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