For All My Over-heating Spoonies Out There:

❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️

For all my over-heating spoonies out there:

While doing chores/moving around, if you start to get really warm, put ice packs in your pockets, 10/10

Drink lots of ice water, but not all at once, your body might freak a little and go nauseous

Have a large amount of tank tops in various colors, when you go out and have to look a bit more formal, use a cardigan/very thin jacket so you always have the option to take it off

Spray bottles on mist form <3

Sometimes resting, or laying down, helps to cool off cause you're not using energy

Keep your bare feet on the cool tile/wood/etc. as often as possible

Bowl of ice in front of a fan works weirdly well

Popsicles, but make sure they're not high in sugar/dairy/etc. because those can make it worse

I know it would seem like tiny tight clothes would be best, but make sure your clothes aren't tight, you don't have to wear long flowing capes and gowns but having shorts that are cotton/loose are always much better.

The backs of your arms (the upper half) your feet, and your knees are often colder than the rest of your body, utilize that

❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️❄️

More Posts from Deck-of-disorders and Others

10 months ago
(I Bring A Sort Of “Everyone Has Inherent Worth Regardless Of Their Productivity” Vibe To Every Conversation

(I bring a sort of “Everyone has inherent worth regardless of their productivity” Vibe to every conversation that ableists don’t really seem to like)


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11 months ago

There are no disabilities which are raised above ableism. The person in the wheelchair, the autistic person, the person with schizophrenia and the person with an invisible chronic illness may all experience society's ableism in different ways, but none of them can expect to avoid it. So the "you wouldn't say X to Y" advocacy needs to retire yesterday. They say all kinds of ableist shit to all of us and it's time to try out some actual solidarity instead of arguing about who has it slightly worse


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10 months ago

I want #chronic illness to stomp on me.


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11 months ago

"All autistics have low empathy" - This statement is wrong.

"Autistics having low empathy is a MYTH, we actually have HIGH empathy!" - This statement is ALSO wrong.

Autistics can have low empathy, they can have high empathy, they can have learned empathy. The myth would be that all autistics only experience one end of the empathy spectrum.

In spreading around misinformation that autistics actually have high empathy, you are disregarding the autistics who do have low empathy. And vice versa.


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10 months ago

I need non autistic people to realise meltdowns are a real debilitating thing that has a serious effect on your mental and physical health NOWWWWW!!! The way its been trivialized and lessened pisses me the fuck off. It's not a tantrum and it doesn't come from "being too weak-willed" it's painful and it's embarrassing AND MOST OF ALL IT'S INVOLUNTARY!! Don't claim to be an ally to autistic or disabled people and then make fun of people who have meltdowns. Literally get the hell out of my sight


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10 months ago

“If you have time to be on social media, you also have time for…” “If you have time to watch Netflix, you also have time for…” Yeah, but do I have the energy for it? Do I have the emotional and mental capacity for it? Am I pain-free enough for it? Can I focus on it? Can I do it without leaving my bed? Can I safely do it without risk of (physically or emotionally) injuring myself by pushing past my boundaries?


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11 months ago

Writing Accessibility PSA

Please avoid using long strings of characters as line breaks in your writing - these are not screen reader/TTS friendly!

Every ‘°’ will be read as ‘degree’ - can you imagine how long it takes to read out a string of 25? Let alone more complicated combinations of characters (eg. imagine listening to TTS read out ~*~ |°| ~*~ multiple times per line break)?

A good rule of thumb is to stick with short, 2-3 character line breaks (eg. I don’t find — or *** too egregious to listen to). Your readers can tell there’s been a scene change whether you use two or twenty em-dashes, but if you use twenty, some of us might have to listen for 30 seconds to read the next scene. If you’re more concerned about aesthetics, you can insert an image of your aesthetically pleasing line break with alt text simply reading ‘line break’ for accessibility.

Don’t feel bad if this is something you’ve never thought about before - now you know better and can make your writing more accessible moving forward!

I would like to invite any other screenreader users to add their own thoughts or preferences to this post. We’re not a monolith and there’s a variety to how different softwares interact with repeating character strings and images with alt text, so there’s bound to be some conflicting opinions on what I’ve suggested above. Let’s try to make the stories we share accessible for everyone :]


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11 months ago

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!


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10 months ago

Hypersexuals who were traumatized by one event, I love you.

Hypersexuals who were traumatized multiple times, I love you.

Hypersexuals who grew up in traumatic environments, I love you.

Hypersexuals who were traumatized at a young age, I love you.

Hypersexuals who were traumatized at an older age, I love you.

Hypersexuals who are still in traumatic situations, I love you.

Hypersexuals who said no, I love you.

Hypersexuals who "agreed to it", I love you.

Hypersexuals whose actions are greatly affected by these experiences, I love you.

Hypersexuals who cope by making jokes about their trauma, I love you.

Hypersexuals who cope by venting about their trauma, I love you.

Hypersexuals who talk with "inappropriate" language, I love you.

Hypersexuals who get uncomfortable talking with that language, I love you.

Hypersexuals who engage in risky behavior, I love you.

Hypersexuals who are scared of intimacy, I love you.

Hypersexuals who show these parts of themselves, I love you.

Hypersexuals who hide these parts of themselves, I love you.

Hypersexuals who are trying to learn healthy intimate boundaries, I love you.

Hypersexuals who struggle with intimate relationships, I love you.

Hypersexuals, I LOVE YOU!

Your experiences are valid, they'll always be valid, and they do not make you less lovable.


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11 months ago

I think the most fucked up thing about intrusive thoughts is it's really difficult to discuss them without discussing their content, because without a discussion of their content it's impossible to get across just how distressing and debilitating they are. "Oh, you have unpleasant thoughts sometimes? Yeah we all have that, I guess."

But if you discuss their content there's this huge risk of people just pulling away in disgust. "Oh god, you have THOSE sorts of thoughts? They should lock freaks like you the fuck up!" As if they think people act on every single thought they have.


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deck-of-disorders - POTS and pans
POTS and pans

[Header Image ID: The disability pride month. It's dark gray with five diagonal stripes, in the following colors: red, yellow, white, blue and green. ]

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