I Need Non Autistic People To Realise Meltdowns Are A Real Debilitating Thing That Has A Serious Effect

I need non autistic people to realise meltdowns are a real debilitating thing that has a serious effect on your mental and physical health NOWWWWW!!! The way its been trivialized and lessened pisses me the fuck off. It's not a tantrum and it doesn't come from "being too weak-willed" it's painful and it's embarrassing AND MOST OF ALL IT'S INVOLUNTARY!! Don't claim to be an ally to autistic or disabled people and then make fun of people who have meltdowns. Literally get the hell out of my sight

More Posts from Deck-of-disorders and Others

10 months ago

Autism acceptance includes accepting all autistic manners of communication.

That means supporting autistic people who talk in a "very childish" way. (I do this a lot irl)

Autistic people who do "TV talking" (this means talking like a character from your favorite media,basically talking in quotes and copying their speech patterns,as far as I know)

Autistic people who use echolia.

Autistic people who are very awkward/quirky when they communicate.

Autistic people who are overly technical,or have very sophisticated and articulate speech.

Autistic people who mumble.

Autistic people who talk really fast.

Autistic people who can't control their tone of voice/inflection.

Autistic people who talk in a monotone voice.

Autistic people who use different kind of sounds,or body language to communicate.

Autistic people who talk slowly and draw out their syllables.

Autistic people who use a lot of sentance fillers.

Autistic people who use Aac devices,communication cards,etc etc.

Edit: acceptance of nonverbal autistics is also necessary. Nonverbal people deserve love,respect,acceptance,accommodation and support.


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11 months ago

It's always infuriated me hearing people say that children have it easy. It's only gotten worse as I've gotten older and have been able to reflect on my childhood and see the children around me grow up.

They do not have it easy. They don't get a say in most important things. They're seen is unintelligent, yet expected to understand things that full grown adults struggle with.

They've got a job, which is school, that is actually proven to not be working for a lot of them; myself included. They're expected to sit still and in silence for at least forty minutes at a time, and those with ADHD are treated as though they're immature and lazy because they often physically can't do it.

Far too many of them have abusive parents that lie through their teeth to make people think everything is fine, and of course, who would believe the child over the parent?

Aspects of abuse has been normalised. Parents are sympathised with when children open up about the things they've gone through, especially if they're not physical. They're told that their parents are only doing this because they love them, or that the child needs to start seeing things from their point of view. Meanwhile, adults can freely complain about their children on public forums and to friends and family and get away with it because "it's hard being a parent".

Fuck off and do better.

DNI Believers of narcissistic/borderline/anti-social/histrionic abuse.


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10 months ago

therapists saying you're surprisingly self aware is like being called a pleasure to have in class for adults


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rb
10 months ago

yall are pro mental illness until they hallucinate

yall are pro mental illness until they dissociate

yall are pro mental illness until they self-isolate

yall are pro mental illness until they're paranoid

yall are pro mental illness until they split

yall are pro mental illness until it's too Scary for your comparatively neurotypical brain to handle


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11 months ago

i love you autistics who can't control their volume . i love you autistics who struggled with/never understood "inside voice" . i love you autistics that yell to communicate their wants and needs . i love you autistics that stim loudly . i love you autistics who make noise .

we are loved . we deserve to be heard and accommodated for .


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10 months ago

I want #chronic illness to stomp on me.


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10 months ago

being chronically ill with fluctuating symptoms is so annoying because when it's at it's worst im like "okay i desperately need some type of mobility aid right now, i haven't been able to leave my house in days" but then i'm able to go for a walk one day and suddenly i feel like im exaggerating my symptoms and that i actually can walk fine and it would just be embarrassing and pointless to ask for a mobility aid assessment

but like ... not struggling as much one day doesn't take away from the days that i struggle the most

our pain is valid even when it's not at it's worst and we deserve the accommodations we need even if we don't always need them at all times


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11 months ago

Begging begging begging leftists... "leftists" to stop using ableism to attack fascists and people who are threats to humanity and the Earth

White supremacist #57 is not "smooth brained" or "psychotic" or "a sociopath" he is anti-human, violent, and a fascist

Stop making jokes about old politicians having strokes or having cancer or catching x y or z life-long illness because disability is not a punishment, it is a morally neutral state of being

Stop and actually think about disabled people for once. We exist. And we're not in greater leftist circles because nondisabled people never include us, never think about us, never wonder what a perfect world would be like with us in it unless they're also disabled


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11 months ago

Let's talk mobility aids!

Canes

a photo of a variety of colored canes standing in a line

Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.

Rollators

a euro style rollator with large wheels, a sling style seat, and a folding mechanism that folds it in half width wise
a classic style rollator with a cushioned seat that folds in half lengthwise

Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.

Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.

Crutches

a set of forearm crutches and a man using them

Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.

Manual Wheelchairs

a standard black hospital wheelchair
a red custom rigid wheelchair

These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.

Mobility scooters

a red mobility scooter

Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.

Powerchairs

a red powerchair that has no headrest and a 4 wheels

Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2

a power wheelchair with a headrest and 6 wheels

Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.

a power wheelchair with a fully adjustable headrest, 6 large wheels, and has the seat tilted at a 45 degree angle showing the additional functions

Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.

There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.

If you use another type of mobility aid and want to educate people, add it on!!


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10 months ago

Trauma is the response, not the event.

And when we talk about how DID is formed from severe childhood trauma, what is not meant is that what happened to you needs to have been objectively "severe". If you have severe trauma responses (such as DID), then you have severe trauma.

Your trauma is enough regardless of what happened to you.

Trauma is incredibly subjective; what was incredibly traumatizing for one person may not be for another. How we become traumatized is related to a complex web of factors. No case of traumatization will look the exact same.

Trauma is not a competition. What matters is that it affects you. It's enough.


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deck-of-disorders - POTS and pans
POTS and pans

[Header Image ID: The disability pride month. It's dark gray with five diagonal stripes, in the following colors: red, yellow, white, blue and green. ]

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