Dear Fellow Career Driven Spoonie,

It okay if you want to get rid of your autism.

Lot of people on internet say that autism great and that they like it. That okay too, everyone allowed own opinion on self.

But not make you bad person if you don’t like it.

It hard having meltdowns and sensory overload. Hard to need others to care for self.

You allowed to dislike your autism.

I want to break down a common point of conflict when addressing NPD stigma.

A lot of hangups people have tend to be along the lines of "but I DO see a lot of people with actual NPD who are acting in toxic or abusive ways".

This will be kind of long, so bear with me.

Point #1: People are way more likely to be diagnosed if they exhibit "stereotypical" symptoms.

There's this image of NPD as a disorder that is only present in those with patterns of destructive behavior towards others. Many therapists have this conception. (Shockingly, the mental health field is not perfect & without stigma.)

Gonna copy-paste this here from my other blog (so forgive me if you've seen it before), because it's a good example.

Three people are criticized at work. Their boss yells at them for their performance in front of everyone. Person A gets mad and defensive. They yell back, using cutting remarks as a way to try and ease the distress they feel. Person B acts really mature and responsible the whole time, nodding along and agreeing and promising to do better, just desperate to maintain and improve their status. Desperate to be liked. Later they go home and handle their distress through self-destructive means, and spend the next few months overworking themself to the point of illness. Person C doesn't seem to respond much at all. They go quiet and seem distant. They don't lash out or lash in, but for the next month or so, their productivity drops. They simply aren't able to focus on work or self-care, no matter how hard they try. The stress is overwhelming. All three of these people have the same root issues, but only the first would be labeled a narcissist. Outwards behaviors and presentations don't reflect the pain, distress, and difficulties with life that are underlying them.

So, three main things happen.

There ends up being a higher rate of people with destructive behaviors who are diagnosed with NPD

The people who don't particularly exhibit behaviors and are considered ""too nice to have it"" are overlooked entirely (and never get any sort of help for their underlying issues, yayyy)

People are more likely to be more honest about "ugly" symptoms / symptoms that are frowned down upon than they are in other mental health communities.

(Also some people decide to act super edgy about it, which is annoying but here we are. Some of them are trolls.)

(And while I'm at it, some people are misdiagnosed with NPD because a psych sees someone who committed a violent crime and is like "uhh slap them with the Evil Asshole™ disorders!! no further thought given.")

Point #2: People who have messed up are not inhuman monsters who deserve no help or support

While I do think it's important for people to understand that patterns of toxic behaviors aren't the ONLY way NPD can present, I'm not going to let the conversation stop at "some of us are nice though!!"

Human beings aren't RPG characters who can be sorted into "monster" or "ally". Every single person has done something hurtful, has messed up, exhibits some sort of behavior that puts strain on their relationships sometimes.

So I'll bullet point some aspects of this that need to be talked about.

People without NPD also commonly exhibit toxic behaviors, but people ignore that nowadays. Either they armchair diagnose anyone who's slightly rude, or they only focus on it in pwNPD and ignore it in themselves or others. NTs can be jerks too, and they're probably less likely to acknowledge it than pwNPD who are constantly watching and checking themselves and analyzing their behaviors and attempting to do better.

Assuming that NPD makes someone abusive doesn't help anyone. Can it impact behaviors, and make it more difficult for people to be self-aware? Of course. But an important step in healing from any mental health condition (especially personality disorders, ime) is realizing that you're not inherently ""bad"", and that you can take responsibility for your actions and learn to deal with things in constructive ways. Just going "NPD makes people bad, full stop"- other than being a mean shitty thing to say- absolves people of guilt and asserts that there's no reason for them to try and improve.

Yes, it's okay for people to hate their abusers. Their abuser. Not an entire community of people who happen to (maybe) share a trait with them.

Building on the above point, people tend to go in defense mode when they hear things like "pwNPD who have acted in toxic ways can learn to improve their behavior", "people shouldn't be saying awful things about folks with this condition", etc. because they automatically try to apply this to their abuser. Interpersonal situations are very different from society-wide mental health access. No, don't stay with your abuser expecting them to change, and don't hold onto the hope that they will. No, don't censor yourself or your hatred or anger towards them. Just don't make blanket statements about a disorder that they may or may not have- blame their abusive actions, not their mental health.

"I hate you for your abusive actions and the harm that you caused me." =/= "I hate a group of people because of an inherent unchangeable part of them that's tied directly to severe childhood trauma they suffered. Because of it, they're evil and unlovable and are incapable of change. They're inhuman and will never experience real connection with others." ..........See the difference??

Even if there were a disorder with a 100% rate of toxic douchey behaviors, I'd want the conversation around it to be changed. I'd want different words to be used to divide up the spaces and conversations and resources, so that survivors of abusive or toxic behavior can get help, but that the disorder still has space to be treated. Otherwise, there are zero resources for healing. Nothing is being done to help these people or solve the issue. They're just told they may as well not try. They're blocked from healthcare entirely, despite how the entire point of being diagnosed with a condition is supposed to be to treat it.

There's a wide range of people who have NPD- it presents in many different ways, a person who has it may or may not exhibit harmful behaviors- but no one deserves to be denied treatment or told they're unlovable because of a condition they have that was formed from trauma.

Speak out against abusive behavior. Don't destroy healthcare for a medical condition.

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

Captions shouldn't be censored. If the video says fuck or cum or cunt the captions should say the fucking word.

Let's talk mobility aids!

Canes

Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.

Rollators

Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.

Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.

Crutches

Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.

Manual Wheelchairs

These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.

Mobility scooters

Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.

Powerchairs

Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2

Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.

Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.

There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.

If you use another type of mobility aid and want to educate people, add it on!!

Medical condition: gets worse without sleep

Medical condition: makes it harder to sleep

Sometimes being disabled feels like you’re surrounded by people with superpowers, and you’re the only regular human.

Because I don’t really feel like I can do less—I feel normal. I’m so in tune with my own body, my own abilities, my own experience. I’ve lived this way for so long.

But then I look at other people, and see how much more they can do, their stamina, their resiliency, and I’m…baffled. Befuddled. Astonished. They seem downright superhuman compared to me. They seem like goddamn superheroes.

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

therapists saying you're surprisingly self aware is like being called a pleasure to have in class for adults

Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”