This Disability Pride Month, I Ask That You Include OCD On Your Mental Illness Positivity Posts. For

i love you autistics who can't control their volume . i love you autistics who struggled with/never understood "inside voice" . i love you autistics that yell to communicate their wants and needs . i love you autistics that stim loudly . i love you autistics who make noise .

we are loved . we deserve to be heard and accommodated for .

dear fellow career driven spoonie,

you’re not a failure, you’re sick.

you were putting just as much effort forward before you were sick as you are now, you just have less energy to use so the results aren’t as exciting. it’s not complacency if you’re putting forward an effort.

it’s normal for your work life to suffer when your personal life does. you’re not a robot, you’re still a person, it’s unrealistic of you to expect yourself to be able to compartmentalize your symptoms at work. your body doesn’t care where you are or who’s time you’re on and it’s okay.

if all you can do is maintain your responsibilities, that is enough. you are probably not going to get fired if all you’re doing is what’s on your job description. it’s okay that you can’t put anything extra forward to grow. you’re growing in other ways right now.

even if you lose your job, you’re still not a failure. you’re not defined by the fruits of your labor, but by the substance of your heart and you are still that same career driven person who worked so hard in that position in the first place.

the reason why you’re successful isn’t because of what you’ve done, but who you are. take pride in your talent, motivation, knowledge, intelligence, and grit. that’s where your value lies.

Begging begging begging leftists... "leftists" to stop using ableism to attack fascists and people who are threats to humanity and the Earth

White supremacist #57 is not "smooth brained" or "psychotic" or "a sociopath" he is anti-human, violent, and a fascist

Stop making jokes about old politicians having strokes or having cancer or catching x y or z life-long illness because disability is not a punishment, it is a morally neutral state of being

Stop and actually think about disabled people for once. We exist. And we're not in greater leftist circles because nondisabled people never include us, never think about us, never wonder what a perfect world would be like with us in it unless they're also disabled

"Oh you talk to yourself! That's unhealthy!"

UGHHHHH NO ITS NOT SHUT UPPPPPP. I'm tired of people acting like it's a bad thing! I talk to myself because what ELSE am I supposed to down with all this energy??? I talk to myself because it makes me feel like I'm releasing energy! ITS A GOOD THING and actually BENEFITS ME. And I only do it when I'm alone anyways, so who CARES.

DESTIGMATIZE TALKING TO YOURSELF.

Recently saw an insta vid where a musician was singing lyrics that described their intrusive thoughts as a person with OCD, and in the comments every so often there would be people writing like "bro what is this 🤨🤨" and "keep this between you and your therapist dont post it on the internet" and it just further fueled my belief that OCD symptoms and intrusive thoughts need to be talked about more because a majority of the struggle with the disorder is the shame surrounding its symptoms. OCD is not able to be easily romanticized or 'quirky'fied like other disorders or neurodivergencies have been*, and as a result its symptoms are more quickly met with disgust or repulsion.

Other people in the comments were thanking OP because it captured the struggle of real intrusive thoughts instead of impulsive ones. Impulsive thoughts are more of the 'I'm gonna dye my hair randomly on a thursday night' thoughts vs the intrusive 'what if I drove my car into that family and suddenly killed us both' thoughts, the latter of which make OCD as a disorder truly debilitating. And the people that immediately assign bad morals to intrusive thoughts? They only further condemn people with OCD to never wanting to talk about the symptoms they've already been struggling with shame about.

I feel it needs to be made more blatantly explained to the public that OCD intrusive thoughts aren't desire based. They're fear and disgust based. You fear hurting anyone so badly your mind can't stop thinking about what if you hurt someone. You fear molesting anyone so you never want to even touch anyone. Your mind fixates on the 'what ifs' and distorts them into the idea that, because you think this way, you must want to act this way--when the reality is the exact opposite.

If a person with OCD ever confides to you one of their intrusive thoughts and you feel a knee-jerk reaction of disgust towards them, it needs to be reiterated that:

1. the person does not want to be thinking about this, their brain is legit hardwired to make those thoughts pop up

2. the person themselves also feels this disgust, often intensely, and they very likely resent themselves for ever thinking it

and

3. they have no desire to enact the intrusive thought, because its intrusive nature hinges on the person's fears and dislikes.

*And to clarify what I mean by romanticization and 'quirk'-ifying, I do not mean to imply that romanticizing any disorder or condition is inherently a good thing. It's only to state that conditions like anxiety and ADHD have been made such common/'trendy' topics recently that they're less taboo to speak about--leading to more people talking about their struggles with it, and helping others realize they might have it too and aren't alone. Because certain OCD traits aren't as marketable (obviously) a lot of those with it are left rather isolated.

therapists saying you're surprisingly self aware is like being called a pleasure to have in class for adults

Let's talk mobility aids!

Canes

Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.

Rollators

Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.

Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.

Crutches

Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.

Manual Wheelchairs

These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.

Mobility scooters

Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.

Powerchairs

Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2

Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.

Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.

There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.

If you use another type of mobility aid and want to educate people, add it on!!

You’re still chronically ill if you have a good day. You’re still valid. Your chronic illness is still valid if you have one good day out of a hundred bad days.

seeing people my age talk about how scared they are of memory loss, which they only associate with old age, is so surreal to see as a 24 year old who has actively experienced memory loss for a long time now

there are causes for memory loss besides dementia and alzheimer’s, i hope y’all know that. dissociative disorders, trauma, brain injuries, thyroid problems, even just stress and lack of sleep can fuck up your ability to store, process, and access memory. and that’s just a few of the many causes i can think of off the top of my head right now.

please stop treating disabled people like some scary “other” that you might become only in the distant, decades-away future. we are your age, too. you may become one of us sooner than you know. stop acting like memory loss marks the end of a life, when so many of us have so much living left to do!

Writing Accessibility PSA

Please avoid using long strings of characters as line breaks in your writing - these are not screen reader/TTS friendly!

Every ‘°’ will be read as ‘degree’ - can you imagine how long it takes to read out a string of 25? Let alone more complicated combinations of characters (eg. imagine listening to TTS read out ~*~ |°| ~*~ multiple times per line break)?

A good rule of thumb is to stick with short, 2-3 character line breaks (eg. I don’t find — or *** too egregious to listen to). Your readers can tell there’s been a scene change whether you use two or twenty em-dashes, but if you use twenty, some of us might have to listen for 30 seconds to read the next scene. If you’re more concerned about aesthetics, you can insert an image of your aesthetically pleasing line break with alt text simply reading ‘line break’ for accessibility.

Don’t feel bad if this is something you’ve never thought about before - now you know better and can make your writing more accessible moving forward!

I would like to invite any other screenreader users to add their own thoughts or preferences to this post. We’re not a monolith and there’s a variety to how different softwares interact with repeating character strings and images with alt text, so there’s bound to be some conflicting opinions on what I’ve suggested above. Let’s try to make the stories we share accessible for everyone :]