Backpain My Beloathed, My Arch Nemesis, My Academic Rival Go Away

Visible Mending Guide

I just saw something that reminded me of this and I wanted to pass it along:

you do not have to stick to the plans you made years ago. those plans might only serve an older and different version of you and that’s okay. don’t limit yourself by decisions you made before you knew all of yourself.

Some individuals with AD/HD, especially without hyperactivity, have an activation problem as described by Thomas Brown, Ph.D. in his article AD/HD without Hyperactivity (1993). Rather than a deficit of attention, this means that individuals can’t deploy attention, direct it, or put it in the right place at the right time. He explains that adults who do not have hyperactivity often have severe difficulty activating enough to start a task and sustaining the energy to complete it. This is especially true for low-interest activities. Often it means that they can’t think of what to do so they might not be able to act at all, or, as Kate Kelly and Peggy Ramundo say in You Mean I’m Not Lazy, Stupid or Crazy?!, they might experience a “paralysis of will” (pg. 65). “The clothes from my trip—a month ago—are just still lying in a heap in the suitcase.” “I spend a lot of time in bed watching TV but my mind isn’t watching TV. I’m thinking about what I should be doing, but I don’t have the energy to do it.”

- Sari Solden, Women With Attention-Deficit Disorder

Congratulations! Today, you get to learn the difference between memory and recall. There is an important difference, and understanding that difference will make you a better ally to the disabled community and also more understanding of your own brain!

What is memory?

Memory is the information your brain has stored for later. Let's make an analogy: your memory can be compared to files stored on a computer. Your brain is extremely complex and has a deep, layered filing system.

When your roommate's friend visits and introduces herself, you put her name in one of the many name folders. Our brains are complex enough that we can assume there are thousands of those folders, each for a different type of name and how you know it: friend names, immediate family names, extended family names, classmate names, coworker names, celebrity names, and so on and so forth, forever.

What is recall?

Recall is not whether you have something stored, but whether you can find it. Like that photo of you at summer camp in sixth grade that's stored somewhere on your computer, the information you learn throughout daily life is sorted somewhere into your brain's filing system. The longer ago that you put the information into the system, the harder it is to find, unless you frequently visit those files.

For the average instance of recall, people generally use the equivalent of the search bar of their brain's filing system. The information is sorted precisely so it's, naturally, recalled in the blink of an eye.

However, you may have had moments of recall issues. Everyone does here and there. The sensation of a word being on the tip of your tongue is a common example of issues with recall. You know the word, but it's just not coming up when you search for it.

In instances like these, you end up kind of manually rooting around in your brain's folders, desperately looking for associated folders that it might have been mis-stored in. You're trying to think of a vegetable you know of, so you start listing off other vegetables to yourself, as if sifting through the vegetable folder.

Sometimes, this association game can bring forth the missing file - or in this case, vegetable name. In other cases, you simply have to let it go and wait for it to come to you later. That might mean you smacking your forehead 48 hours later when you're in the middle of driving to work and the name of that vegetable suddenly throws itself right in the middle of your internal monologue.

Recall and disability

So, what does this have to do with disability? Well, the average person may have occasional recall issues, but for many disabled people, these issues are extremely prevalent. For neurodivergent folks or those with brain fog, we can end up having trouble recalling things many times in a day. It is extremely frustrating and can even be embarrassing in social situations.

For example, your roommate's friend, who you've hung out with on multiple occasions and heard numerous stories about might drop by six months later and you might stand there trying to avoid talking while you scramble desperately through your name files trying to recall her name when you know it's in there somewhere. It's a real life reproduction of that scene in SpongeBob where he only knows how to be a waiter. By the time she addresses you, it's too little too late and you have to admit that for some reason her name is evading you. It's humiliating.

Be understanding of recall issues

These issues have little to do with how important something is to a person. If you know someone who's disabled and they have frequent issues recalling words or names, it's just because the search function in their brain sometimes breaks down and they have to rely on manually digging through the billions of memories they have to try and find what they're looking for.

If you know someone with this issue who is comfortable with it, try filling in the gaps for them! It can be a fun bonding experience, especially between two people with recall issues, to immediately offer a word that seems to fit the flow of the sentence as soon as the other starts to draw a blank. The better you know them, the easier it is.

If you know someone with recall issues, be patient when they use you as a living thesaurus. You're saving them countless hours of googling or agonizing over what that word was - you know, the one that's like willingly suffering for an extended period of time about something that may or may not matter? (I just had issues recalling 'agonizing' 😔)

Anyway, that's all for today! I hope you've all learned something new about recall and how it affects people with disabilities differently/more frequently than the average person

I just learned a thing called self inserted character, and turns out that is what I have been doing almost whenever I'm obsessed with a story and I am so excited that that is a thing and it means I have a way to work on it holy crap, and that this little imagination of mine is okay, like I'm allowed to do that. aaaaaaaaahhhhhhhhh

Kiss me First - Azana Vista DMPs by Alex Tornberg