I Need People To Understand That When A Person With A Chronic Illness Talks About The Fatigue That Comes

i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

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6 months ago
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1 year ago

(TW FOR ABLEISM, MELTDOWNS, ETC.)

Supporting disabled people is more than just supporting us when you think its cute, easy, or beneficial for you.

If your support ends when you see an adult in public with a diaper bulge, you aren't supporting disabled people.

If your support ends when you see someone drooling, you aren't supporting disabled people.

If your support ends when someone has a violent meltdown in public, you aren't supporting disabled people.

If your support ends when someone needs help being fed, you aren't supporting disabled people.

Etc. Etc. Etc.

I know that you dont think its cute or aesthetically pleasing to try and calm me down and be understanding of me when I throw my communication device across the room and slam my head into the ground because someone laughed too loudly, I know that you think its embarrassing. I know you dont think it's all "uwu cute tism" when I can't shower for a week straight and spend the whole day crying, yelling, and biting myself, but if that makes you angry at me, you arent supporting disabled people.

What is your limit to supporting disabled people? What is your limit to being okay with the fact that I am NOT like your nondisabled friends?

Where does the support end and the disgust start? How long until we are "too disabled" for you?

/not at anyone specific

2 years ago
Exuberance because I considered The Stoker so good. In the evening I read it to my parents, there’s no better critic than I while reading aloud in front of my extremely reluctantly listening father. Many shallow passages before apparently inaccessible depths.

— May 24, 1913 / Franz Kafka diaries

1 year ago

literally obsessed with the design of blobjects

Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
Literally Obsessed With The Design Of Blobjects
2 years ago

Wait wait wait hold up.

Do neurotypicals not automatically look for patterns?? How?? It's so automatic what

Like for example, there's a item of clothing with flowers printed on it. Do neurotypicals not immediately try and find where the pattern repeats?

I spent years trying to figure out what the pattern was in the tiles in my bathroom.

I stared at someone's leopard print blanket for a good 5 minutes to find duplicate spots.

I genuinely cannot imagine a world where your brain doesn't do that.

Ok yeah bye 👍

1 year ago

“Thank you for asking what nobody else did.

“Thank You For Asking What Nobody Else Did.
“Thank You For Asking What Nobody Else Did.
“Thank You For Asking What Nobody Else Did.
“Thank You For Asking What Nobody Else Did.
“Thank You For Asking What Nobody Else Did.
“Thank You For Asking What Nobody Else Did.

What not even I considered.”

Drawn with my non-dominant hand.

2 years ago
Me On The Weekly 🤧

Me on the weekly 🤧

1 year ago

“Public libraries are such important, lovely places!” Yes but do you GO there. Do you STUDY there. Do you meet friends and get coffee there. Do you borrow the FREE, ZERO SUBSCRIPTION, ZERO TRACKING books, audiobooks, ebooks, and films. Have you checked out their events and schemes. Do you sign up for the low cost courses in ASL or knitting or programming or writing your CV that they probably run. Do you know they probably have myriad of schemes to help low income families. Do you hire their low cost rooms if you need them. Have you joined their social groups. Do you use the FREE COMPUTERS. Do you even know what your library is trying to offer you. Listen, the library shouldn’t just exist for you as a nice idea. That’s why more libraries shut every year

1 month ago

I hate that chronic illnesses come with other chronic illnesses it’s like a buy one get one deal from hell

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emptyspaxes - Bisho
Bisho

I go by Bisho. I'm chronically ill, Autistic, and Physically Disabled. I love Horror Games and Kirby so much. I suck at social interactions online and in person.

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