It Would Be So Cool If Able Bodied People Could Get It Through Their Heads That I Dont Just Get A Little

it would be so cool if able bodied people could get it through their heads that i dont just get a little tired or hurt a little bit when i do things.

“we need to start doing xyz —” i cant “but it needs to get done” i still cant “but —” cant :)

More Posts from Deck-of-disorders and Others

10 months ago

Trauma is the response, not the event.

And when we talk about how DID is formed from severe childhood trauma, what is not meant is that what happened to you needs to have been objectively "severe". If you have severe trauma responses (such as DID), then you have severe trauma.

Your trauma is enough regardless of what happened to you.

Trauma is incredibly subjective; what was incredibly traumatizing for one person may not be for another. How we become traumatized is related to a complex web of factors. No case of traumatization will look the exact same.

Trauma is not a competition. What matters is that it affects you. It's enough.


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10 months ago

being chronically ill with fluctuating symptoms is so annoying because when it's at it's worst im like "okay i desperately need some type of mobility aid right now, i haven't been able to leave my house in days" but then i'm able to go for a walk one day and suddenly i feel like im exaggerating my symptoms and that i actually can walk fine and it would just be embarrassing and pointless to ask for a mobility aid assessment

but like ... not struggling as much one day doesn't take away from the days that i struggle the most

our pain is valid even when it's not at it's worst and we deserve the accommodations we need even if we don't always need them at all times


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9 months ago

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it


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11 months ago

There's only one real way to categorise disorders and it's when you google it and the first results fit into one or more of the following categories:

1. "Is your child-" "Does your child-" "How to cope with the burden of being a parent for-"

2. "How to get better: Step One: have a lot of money!" "How to get better: Step One: simply stop having it!"

3. "10 Ways To Spot Sickopaths With This Disorder So You Can Protect Yourself" "The Bad People Disease -by Dr. Eugene X."


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10 months ago

autism thing where i have to watch youtubers i generally agree with react to every drama or apology ever (multiple sources) because someone can make the worst, most manipulative and dishonest apology video, and i will watch it and go "yeah okay :3"

i just cannot detect it like at all. i will not notice anything is wrong. & then the youtuber reacting is like "look how awful that was look at all of these bad things they did in it" and every time i'm like holy shit man you're so right actually i did not see

have to be super careful about where i get my news bc i know i'm so easily influenced bc i miss out on this stuff. & i'm tired of ppl talking down on people who don't pick up on this on their own. it's not my fault. i try to educate myself by watching other ppl talk about it but if i make a mistake please just educate me don't assume i'm evil?


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10 months ago

Captions shouldn't be censored. If the video says fuck or cum or cunt the captions should say the fucking word.


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11 months ago

"Oh you talk to yourself! That's unhealthy!"

UGHHHHH NO ITS NOT SHUT UPPPPPP. I'm tired of people acting like it's a bad thing! I talk to myself because what ELSE am I supposed to down with all this energy??? I talk to myself because it makes me feel like I'm releasing energy! ITS A GOOD THING and actually BENEFITS ME. And I only do it when I'm alone anyways, so who CARES.

DESTIGMATIZE TALKING TO YOURSELF.


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11 months ago

hey, disabled person! do you feel tired all the time? do you feel like you’re working twice as hard as abled people for half the outcome? do you take longer to do every single little thing than an abled person would see as reasonable? well. I would like to introduce you to the concept of crip labour (I first came across this in Smilges, 2023 but I cannot verify whether they came up with the term)

crip labour is a term to describe all the extra work disabled people do on a day-to-day basis. it’s also a form of labour that is invisible to abled people, because they just don’t have to think about most of it. it includes:

the extra labour required to get ready to leave the house in the morning (e.g. the extra steps involved in getting dressed or having a shower)

the social labour required in order to communicate your needs to abled people

the labour involved in having to plan ahead (e.g. knowing where accessible toilets are, knowing where ramp access is, knowing which venues are safe for you to be in)

the administrative labour involved in gaining access to particular institutions (e.g. applying for disability welfare, applying for education access plans, etc)

having a term to describe all the labour involved in keeping yourself alive and happy helps to make that labour more visible. it gives us a way to point out that we are doing more and with less capacity, and it helps to explain why so many of us are so exhausted all the goddamn time

so I hope this is a helpful term for people to bring into their lives!


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11 months ago

to the disabled person who needs to hear this:

you don't have to earn or "deserve": resting, sleeping, taking your medications (including OTC meds, cannabis, creams, etc.), using your mobility aids, eating, declining to go to an event, choosing to stay home, having a self care/lazy day, or taking care of yourself in any other capacity. you can be good to yourself today.


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11 months ago

Recently saw an insta vid where a musician was singing lyrics that described their intrusive thoughts as a person with OCD, and in the comments every so often there would be people writing like "bro what is this 🤨🤨" and "keep this between you and your therapist dont post it on the internet" and it just further fueled my belief that OCD symptoms and intrusive thoughts need to be talked about more because a majority of the struggle with the disorder is the shame surrounding its symptoms. OCD is not able to be easily romanticized or 'quirky'fied like other disorders or neurodivergencies have been*, and as a result its symptoms are more quickly met with disgust or repulsion.

Other people in the comments were thanking OP because it captured the struggle of real intrusive thoughts instead of impulsive ones. Impulsive thoughts are more of the 'I'm gonna dye my hair randomly on a thursday night' thoughts vs the intrusive 'what if I drove my car into that family and suddenly killed us both' thoughts, the latter of which make OCD as a disorder truly debilitating. And the people that immediately assign bad morals to intrusive thoughts? They only further condemn people with OCD to never wanting to talk about the symptoms they've already been struggling with shame about.

I feel it needs to be made more blatantly explained to the public that OCD intrusive thoughts aren't desire based. They're fear and disgust based. You fear hurting anyone so badly your mind can't stop thinking about what if you hurt someone. You fear molesting anyone so you never want to even touch anyone. Your mind fixates on the 'what ifs' and distorts them into the idea that, because you think this way, you must want to act this way--when the reality is the exact opposite.

If a person with OCD ever confides to you one of their intrusive thoughts and you feel a knee-jerk reaction of disgust towards them, it needs to be reiterated that:

1. the person does not want to be thinking about this, their brain is legit hardwired to make those thoughts pop up

2. the person themselves also feels this disgust, often intensely, and they very likely resent themselves for ever thinking it

and

3. they have no desire to enact the intrusive thought, because its intrusive nature hinges on the person's fears and dislikes.

*And to clarify what I mean by romanticization and 'quirk'-ifying, I do not mean to imply that romanticizing any disorder or condition is inherently a good thing. It's only to state that conditions like anxiety and ADHD have been made such common/'trendy' topics recently that they're less taboo to speak about--leading to more people talking about their struggles with it, and helping others realize they might have it too and aren't alone. Because certain OCD traits aren't as marketable (obviously) a lot of those with it are left rather isolated.


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deck-of-disorders - POTS and pans
POTS and pans

[Header Image ID: The disability pride month. It's dark gray with five diagonal stripes, in the following colors: red, yellow, white, blue and green. ]

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