It's All Fun And Games Talking About Your Disability And Advocating For It Until Your Disability Disables

therapists saying you're surprisingly self aware is like being called a pleasure to have in class for adults

call me tism the way i awe at his presence

me when the disability disables me: oh what the fuck? this sucks. what the hell man!

to the disabled person who needs to hear this:

you don't have to earn or "deserve": resting, sleeping, taking your medications (including OTC meds, cannabis, creams, etc.), using your mobility aids, eating, declining to go to an event, choosing to stay home, having a self care/lazy day, or taking care of yourself in any other capacity. you can be good to yourself today.

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

people will be like "mental health matters <3" until someone has an "evil disorder"

Survival tips for when you're disabled and living in poverty

I've seen a few of these helpful posts on here and I thought I would make my own. These are just what helps me and what I've learned over the years to survive. I will continue to update this so please check back every so often.

Don't be ashamed to shop at dollar stores, Aldi, thrift stores, habitat for humanity stores, dumpster dive, take what's thrown to the curb, use food banks, get assistance. I've gotten some decent things that way. Always check with your counties human service department, churches(if you're comfortable with that) they will likely have resources for you (If in the US, please share info if not in US, all are welcome).

Couldn't brush your hair for a few days? Kids detangling spray helps a lot and smells good!

Haven't showered for a while? Keep around wipes, deodorant, dry shampoo. If you have to just stand in the water and rinse your body off or just wash the important parts ( pits, crotch and butt, if you can do more then add in your feet and hair. If you still smell okay but hairs a little greasy? Just wash hair in the sink. You don't have to shower everyday (if you can great).

Brushing teeth is a challenge? Keep floss(I prefer flossers), toothpaste,toothbrush, a cup, water and a towel by your bed, just do it there while watching something and when you get up take it to the kitchen or bathroom. You can even use a washcloth to quickly rub your teeth with then use mouthwash(if you can stand the feeling of it lol). Keep some of those single use disposable travel tooth wisps. Chew some sugar free gum. I've also learned that if you just wet your toothbrush with water and brush like that it will still help more than doing nothing.

Btw you don't have to just do your washing/grooming in the bathroom. I wash my hair and teeth in the kitchen because it's higher, less back pain for me.

Have chronic pain? Maybe have a hard time bending or just can't seem to change underwear. It's okay, take a box and put all your underwear and socks in it then store it by your toilet. We all have to use it eventually so while you're there you can slip something fresh on.

Can't remember things due to memory issues or easily distracted? Take advantage of your phone timer and clock. Or buy a timer. I personally have to set an alarm for everything from food to laundry. Keep notes in your phone or written down, put down how long things take like laundry or food, it makes it good smoothly.

IF you can afford to, it's always worth buying products that can serve you and make life easier. Like an extendable scrub brush for showers to floors.

Don't be ashamed to use medical aid equipment. You don't have to prove you need it, if it makes your life easier then you need it. Check you local VA office or Human service office or sometimes charity thrift stores, they might have some you can buy for cheap or have for free(at least where I live they do, again for the US).

If able to and it serves you, get a shower chair, a detachable shower head, a foot scrub mat, a bidet(seriously though if you have IBS or bleed heavy on your period it's so worth it and you save money on toilet paper, especially if you get one with a dryer)

Have heavy periods? Buy the adult diapers, don't be ashamed and for extra protection lay a training pad or dark towel down to lay on.

Always keep a big jug of vinegar around, you can do so much with it, from cleaning house, laundry, cooking, and much more.

Cleaning your home or space can be very overwhelming. So just do what you can. You don't have to do everything at once like you can just do one small thing a day or when you have time. If you're not going to wash dishes rinse them off first before putting it in sink. Use empty food containers(like butter or whipped cream container) or freezer bags to store food because if you aren't feeling it you can just toss it.

Keep trash bags in your room. Get a degreaser dish soap. Get a scrub wand. Get gloves if you don't like how it feels to do dishes or clean. Let your pots and pans soak in soap and hot water, but don't let it set for long or it could rust. If you can buy nonstick pots and pans, cleaning is so much easier just never use metal utensils on it. Washing one plate is better than washing no dishes.

Listen to music or a podcast or anything while you do things to help pass the time

Keep water by your daily meds.

Don't feel guilty for using disposable dishes. Sometimes you just need it to get by and make things a little easier in a life that's really hard.

When you get up to go somewhere just take a moment to stretch and move a little.

If you're going outside, take trash with you and check your mail, take a moment to breathe and let the sunlight and or fresh air greet you. Just enjoy it for a moment. If it's at night enjoy the fresh air and night sky.

If you have a pet, ask your vet if they have any financial aid programs to help with vet bills. Where I live they have a financial aid program and the option for a special credit card (mines called Care Credit it pays for vet visits and dentist) you make a payment every month but I will warn you interest is high and you will have to take out personal bank loans just to pay it off, it barely goes down and these aids are unfortunately hard to get accepted for, but worth a shot. Sometimes (be smart about this though) you can solve the issues with your pets on your own. I've delt with a lot and couldn't afford many vet visits for my cats, so I'd do my research and oftentimes just call the vet for at home advice, and I'd buy what I needed in the pet store. (I've treated, hotspots, UTIs, wounds, and lots of other situations) but like I said be smart about it, if something is wrong and it's out of your control take your fur babies in, please.

The library is your friend, use it. It has so many resources for you to use. If you're not sure they have what you need just call or email them. Some offer items like sewing machines, kitchen appliances you can check out. Some if not most even have books you can listen to by audio or a free streaming services (it ain't Netflix but it's free). Just ask, those librarians are there to help and want to help.

Download apps like Pluto tv, you can watch free shows and sometimes movies, there are break ads and it's not as nice as other streaming services but it's free.

If you need a phone try applying for a government cell phone, I'll be honest they aren't like the nice new ones and can be slow but you can call and text and use some apps and if you stay within your minutes that month you never have to pay.

You can sometimes find government programs that help with internet and sometimes a computer or tablet.

Get a slow cooker, rice cooker, any kitchen appliance that makes cooking easy. You can get these at thrift stores, Aldi and other places for cheap.

If you have earrings like studs or any piercings I suppose, keep rubber gloves and alcohol pads on hand and find some baggies. Every so often take them out, they will probably be gross, just clean them with the alcohol pads and put them in the bag, the clean your ears. Let them breath then change to new jewelry. If they are stuck like mind sometimes do (this happens usually with screw on backs) don't panic. Wipe it and your ear with the alcohol pad then put on the gloves and twist, it might take a few goes. It that doesn't do anything, take some pliers sanitize it with alcohol, put something like the glove between the jewelry and pliers then twist, that should get it off. I need to inform people that earrings do get dirty, it happens, you can be super clean and still get some gunk. Doesn't mean it's infected or you're gross or doing a bad job. Some people produce more oils and stuff then others. In my case I have a skin condition, I'm very clean. They get a lot of "ear cheese" but they're not infected, it's just I produce more oils and stuff there.

If you struggle with laundry whether it's affording it or doing it, let me tell you my secret, I WILL get hate for this. As long as you're clothes don't smell or are dirty or full of sweat, or you just keep wearing them for a short time, you don't have to wash them. But like if they do start to smell and are dirty and full of sweat, yeah wash them. This is just for pants, hoodies, jackets, tops and dresses. ALWAYS wash underwear and socks, and you can let your bra or binder go but you gotta wash it sometimes. You can just give it a good wash in the sink and air dry it too. And with blankets, just wash the sheets and pillows cases, unless the comforter or top blankets need a wash.

On that note if you get a mattress use a protector sheet under the fitted sheet and freshen it up once in a while (find how to online) it will last longer and stay cleaner and you won't have to buy a new one for a while.

If you're feeling stressed or going through trauma, don't be afraid of play! Buy those toys(child or adult toys whatever you want), play, it helps with stress so much! Forget about what others may think.

And if showers or baths bore you, buy toys or shower bath crayons or paint or those color tablets. You can even buy a bubble machine for the bath tub, so much fun I swear.

If you want to relax by reading but don't like anything out for adults, get books for kids! Who cares!

If you have a habit of getting fruit flies, if you are able to try getting carnivorous plants.

I just learned that if you have a paper shredder and shred a bunch of stuff you can use the shreds as cat litter! You need to change it completely out about everything other day so I'd use a litter liner or wear gloves. Litter is expensive and this way it insures no one will steal you document info.

Just a hack but if you have anxiety or trouble reading the menu or deciding. Bring up the restaurants menu on your phone before ordering (this is more for fast food), it always helps me a lot.

Always keep vinegar, applesauce, flour, sugar, brown sugar, spices, coco power, butter, salt on hand.

A very common trick to make milk or soap stretch is to add water. It's not great but it can help. Also don't be afraid to but powdered or boxed milk.

So that's all I can think of that helps me survive that also might help you as well. Also I shouldn't have to say this but this is a judgement free post, if you're going to make judgemental comments then you're not welcome here. To Everyone else please feel free to add on to this post with what helps you and would like to pass on. You do not have to be disabled to like or reblog this post, If you find it helpful, wonderful. 🤓✌️

Update with any helpful resources I can find, ease add your own.

If you're on EBT/SNAPs you can install the app called providers to check your card balance instead of calling, it also had resources. (It was much better before the update change but still nice)

If you need a phone go to SafeLink wireless and Q Link wireless. When I was first starting out that's what I used it was a life saver.

If you live in Wisconsin (Dunn, Eau Claire, Chippewa falls and Barron county, and likely more) you can call your counties human service department and ask them about a program called CCS. There are many more programs but this one helps you if you are struggling in like and need help. Like for me I got jobs, made money, got an apartment, learned to be independent, got my driver's license, got my GED. It completely changed me, I'm a hole new person after it. They can help you with paperwork, your benefits, and when I need to stop working I was able to get set up with a county lawyer who helped me get on SSI (and took care of some past issues). They can even help with mental health. I did horse therapy, and many more places that helped so much to relax and develop skills (like a ranch with animals and we'd cook a lot). They even provided someone who prescribed me medication a nurse and therapy sessions at the human service department. I got connected with peer support. Just ask your human service department.

Some museums(I only know of Minnesota doing this) give you a discount (you only pay $3 per person instead of like $14) if you have proof of like EBT or any assistance. Just check their websites or call for information.

If you have a forward health insurance card or are on Medicaid and struggle with rides to appointments there is a medical transportation company called Veyo, previously called MTM. I am not sure if they service outside of Wisconsin. They aren't perfect but can definitely help. You call with your forward health ID number and you can schedule rides for appointments and get gas mileage reimbursement. You need to schedule two days or more in advance. The website is https://wi.ridewithveyo.com/

And the phone number is 1 866-907-1493

You can set up you're membership online.

If it's on the way and needed they can stop by your pharmacy after appointments as well.

Autism acceptance includes accepting all autistic manners of communication.

That means supporting autistic people who talk in a "very childish" way. (I do this a lot irl)

Autistic people who do "TV talking" (this means talking like a character from your favorite media,basically talking in quotes and copying their speech patterns,as far as I know)

Autistic people who use echolia.

Autistic people who are very awkward/quirky when they communicate.

Autistic people who are overly technical,or have very sophisticated and articulate speech.

Autistic people who mumble.

Autistic people who talk really fast.

Autistic people who can't control their tone of voice/inflection.

Autistic people who talk in a monotone voice.

Autistic people who use different kind of sounds,or body language to communicate.

Autistic people who talk slowly and draw out their syllables.

Autistic people who use a lot of sentance fillers.

Autistic people who use Aac devices,communication cards,etc etc.

Edit: acceptance of nonverbal autistics is also necessary. Nonverbal people deserve love,respect,acceptance,accommodation and support.

I need non autistic people to realise meltdowns are a real debilitating thing that has a serious effect on your mental and physical health NOWWWWW!!! The way its been trivialized and lessened pisses me the fuck off. It's not a tantrum and it doesn't come from "being too weak-willed" it's painful and it's embarrassing AND MOST OF ALL IT'S INVOLUNTARY!! Don't claim to be an ally to autistic or disabled people and then make fun of people who have meltdowns. Literally get the hell out of my sight

(I bring a sort of “Everyone has inherent worth regardless of their productivity” Vibe to every conversation that ableists don’t really seem to like)