intersex person: yeah my parents agreed to put me under surgery as a baby because my doctor thought my genitals made me ugly. they feel numb half the time. sometimes i can’t tell if it’s blood, discharge or piss down there. i feel violated in every sense of the word. i can’t look below the waist without wanting to throw up
person you thought was safe: lmao imagine being so privileged you complain about getting surgery that some would die to have lollll #cis privilege
ive come up with a 3rd webcomic idea fhjdj
i have not started any of them.
well they have characters and a rough storyline but.. thats it.
anyways maybe ill actually start one for real this year.
Shout out to people who use adult diapers
Shout out to people who have chronic UTI
Shout out to people who have catheters
Shout out to people who have urostomys
Shout out to people who still wet the bed
Shout out to people with kidney scarring
Shout out to people who deal with kidney stones
Shout out to people with kidney cancer
Shout out to people with kidney failure
Shout out to people who I didn’t mention but still have kidney/urinary tract issues
I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.
im reading emily wilde’s encyclopaedia of faeries right now and im not sure how i feel about it.
like i like it dont get me wrong. i eat anything up that has fairies of any kind.
but im a very.. emotional person, and so the format of the book being emily’s diary, and her being quite a.. professional and almost stoic? person, doesnt quite engage me as much.
maybe she taps into her emotions later in the story (i’m about a 1/3 of the way through) so idk!! thats just my thoughts so far
comfort items are important. whatever that means for you, do it.
me carrying a stuffed animal around while being disabled is not "infantilizing disability"
I am an actually disabled person who carries a stuffed animal as comfort bc disability is hard
what's "infantilizing disability" is assuming that just bc I carry a stuffed animal I'm not capable of making decisions for myself. or that having a stuffed animal makes me a less serious, adult person than you are.
update i went to the beach that day it was fate
i miss the beach so much
YES YES YES. it is incredibly hard to understand our own bodies and feelings.
this is why we need doctors to really educate themselves by taking the time to listen to us and learn from us. a standard medical textbook isnt going to explain the medically complex to you, only working with medically complex people themselves can.
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)
likes to charge, reblogs to cast
anyone else use drafts like a todo list
i have so many drafts that just have like one or two words where i was like omg gotta post about this and then moved on and i dont really know what i was trying to say !!
pls communicate with urself better ty bee
Helping physically disabled people doesn’t mean manhandling us like we're pieces of luggage.
Ask how you can help, rather than going ahead and hauling us like sacks of human cargo. It's for both respect and safety reasons, by the way.