Disability? More Like Dis-sucks

Psst… HEY

If you are also queer, disabled, and/or have chronic pain, and wanna see art and other content about it, then feel free to follow my youtube ;))

I've been making shorts, and hopefully filming a full video when I have the energy!

One of my videos (´ . .̫ . `)

gentle check in for my fellow POTSies. does your body feel:

heavy

weak

shakey

sweaty

or generally overwhelmed?

if yes, here's a little reminder to hydrate, get in some electrolytes, take ur meds if you forgot, and adjust your positioning if you can! sit down, lay down, stretch your legs, elevate your legs, etc. if you've been in one position too long, you may find a little bit of movement to help.

i know for me even sitting upright too long can exhaust me and i dont realize until im out of sitting up spoons. i just did that today now, after some wandering around the house, im having my Horizontal Time (bed). after this i'll likely take a 5 minute walk.

there's no shame in needing rest. there's no shame in needing a break from something to go stretch or get water/food. there's no shame in only being able to do very light exercise. it's okay to listen to your body and do whatever is best for you!

Happy birthday to meee!!!!! Introducing my walker named Susie, throne on wheels

THANK YOU TO EVERYONE WHO DONATED TO MY GO FUND ME TO GET MY WALKER

Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!

Digital Detox Helpung With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

Would anyone want a video on how I went from dressing in decora kei to, this?

Lol idk what to call my current style. I just do what I want

in trouble financially once again. please help two poor trannies keep food on the table this month.

And if you can believe it, I am e-begging once again. bills are all paid but we have no money to pay for food until my food stamps come in two weeks from now. anything helps and anything means the world.

venmo/paypal/cashapp : snowycrone

POTS Life Hacks For Diffucult Mornings

We all know how important it is to stay hydrated, especially when chronically ill.

If you're anything like me, you wake up feeling awful. Keep a giant glass of water right next to where you sleep. Before getting out of bed, drink water for about 1 to 2 minutes. Bonus points if you use electrolyte drops.

Breakfast- a breakfast I love is oatmeal and salted butter toast. It gives me protien and some salt to start off my day

Having an extremely difficult morning? Don't be afraid to ask for help if it is available to you! There are days where my girlfriend makes me breakfast. You are NOT weak for asking for help. In fact, I think you're pretty brave.

Digital Detox Helping With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

ROUGH DRAFT chronic illness and insomnia

You can't sleep lying on a nail bed. The spikes digging into you. If you lay properly, it distributes all your weight. One wrong move and you're in agonizing pain. You roll around all night, trying to get one minute of rest.

You wake up after trying to sleep for hours. They ask you why you're so tired. No one sees the spiked bed, only you.

Would you dress like this?