some guy invited me to go clubbing with him and his friends... i tell him i would go, even though it's not something i usually do, but i couldn't drink because of the medication i'm taking/health issues
he looked at me and just went "oh maybe some other time then"
and my question is why? WHY am i required to drink to hang out with people? and if that's just a rule then there won't be some other time, because i got a chronic illness and not just a cold
made the typical joke about "being allergic to gravity" today and i got an understanding nod instead of a "wtf"... now i'm the one that's confused
watching other people just live their life doing things you don't know if you'll ever be able to again...
i just went climbing today which is something that will probably send me into a flare up, but omg it was so much fun...
i wish i could do things like that without consequences
i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD
(unfortunately i might have become a little bitter, but i'm working on it)
me: "i'm so fatigued and my brain fog is pretty bad"
healthy person: "stop complaining, i'm tired too"
your "tired" is not the same as my fatigued! sleep won't cure me, this is not how it works!
love the random wave of nausea that hits me multiple times a day /s
Chronic illness be like: now our right knee is hurting
Me: ok. Is this a new accessory or should I get it checked out?
Chronic ilness: I don't know sis, sounds like a you problem tbh...
so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb
first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over
a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:
"oh but it probably won't affect you" i don't care it's still unfair
i would like to cancel my chronic illness prescribtion... i need to get things done
me casually overdoing it on a low symptoms day and then wondering the next day why i feel bad
(will i ever learn? probably not)