The long post w the good explanation is being shared but not inspiring much help. So, I simplified it.
My illness is straight up fatal. Not gonna beat around thatBush, anymore. I seem desperate for help because I AM desperate for help.
My nephrologist has seen enough improvement in my kidney function, lately, to believe someone my age (early 30s) might have a longer life WITH PROPER AND FREQUENT MEDICAL ATTENTION. Sadly, that just isn’t an option where I live.
Please, if you can help me with moving expenses (even just a couple of bucks) I would be grateful. I’m sinking fast in Mississippi and now my doctors are giving me too much hope to ignore. I wanna get out of this situation and I’m working my fatigued, brain-foggy ass off to make it out of here.
If I can undo the damage my heart failure caused to the rest of my body, I want to. I don’t want to spend another month KNOWING what I should be eating, what medicines I should be taking, what tests and treatments I should be getting… and receiving almost none of it because Mississippi lawmakers think people like me have somehow earned slow, painful deaths.
source
Please.
In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…
And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…
Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.
He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.
That’s Louis Rossman, a repair technician and YouTuber, who went viral recently for railing against Apple. Apple purposely charges a lot for repairs and you either have to pay up or buy a new device. That’s because Apple withholds necessary tools and information from outside repair shops. And to think, we were just so close to change.
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