Hey I Don’t Know Who Needs To Hear This But Your Pain Is Bad Enough. when You Are Used To Pain, It’s

Just Autistic Things...

Being excited about beige food and sitting alone in your room while watching your special interest on youtube for the 50th time this month...ngl I’m excited as heck for it!

For anyone that needs a reminder

Just because you’ve been struggling for so long, longer than people think you should be, that doesn’t mean you are faking it

Just because people don’t understand that there are good days and bad days, that doesn’t mean you are faking it.

Just because even you are doubting yourself and your body, that doesn’t mean you are faking it.

Just because you’ve been in pain for so long you don’t remember what life was like before pain, that doesn’t mean you are faking it

Just because there are days you feel like you don’t even need the cocktail of medicine you take every day and night, that doesn’t mean you are faking it.

Just because people with the same condition have worse symptoms than you, that doesn’t mean you are faking it.

Just because your symptoms are unpredictable, that doesn’t mean you are faking it.

YOU. ARE. NOT. FAKING. IT

YOU. ARE. NOT. AN. IMPOSTER 

My headaches have lasted since November 29th and it’s currently January 26th😞. It feels as if it has never stopped once and I honestly don’t remember what it’s like to not be in pain because of my head. I’ve had blood work and a ct scan done and everything comes back fine. Sometimes I feel like the doctors might think I’m faking my pain, but honestly why would someone do that for so long. I feel like my life is crumbling apart around me and no one in my family or friend group understands the pain I’m going through. Everyone tells me to get better soon but it hasn’t ever felt better and I’m getting annoyed at that sometimes. I know people just care and want to put in some motivation or what not but it just reminds me that I feel like I’ll never be the same again. I’m just praying for a diagnosis and to finally understand how to live my life again... but if anyone ever needs anyone to talk to about chronic pain or anything I’m always here for everyone. It’s hard and sometimes you just want a shoulder to cry on and I’ll be that shoulder if you ever need anyone 🥰💕

I like how the diagnosis thing for chronic migraines is like “15 headache days a month, each lasting more than 4 hours” like.

I don’t even have separate headaches it just. Doesn’t stop. It’s unending. Constant headache.

I’m up and active today? Doesn’t matter I’ve still got a headache. I’m talking and laughing and participating in my life? Still got a headache. It doesn’t stop. Sometimes it’s not as bad but it’s always there.

Lots of people (my mom included) don’t seem to understand that it literally never ends.

I don’t remember the last time I wasn’t in pain.

Genuinely.

I can’t remember.

I don’t think that a lot of people know what ABA/masking “therapy” actually does to autistic children.

(ANALOGY) If you’re taking a pan out of a hot oven and it hurts your hand, you’ll scrunch your face up and go “ow!” But then someone else comes along and tells you to be quiet, and then force you to keep taking out and putting back in the pan, until you don’t react when you do it. It still hurts, of course, but you’ve been conditioned to not react whenever you are burned by the pan. You could’ve used an oven mitt or had someone else get the pan for you, or maybe just not have done it at all, but you were told for years what the “right way” to take the pan out was. And now you’ve built up callouses, and take the pan out the exact way you were trained to, unconsciously ignoring your pain. It still hurts, but you’re not supposed to do it another painless way, and instead continue to hurt, because it’s all you were taught to do.

ABA doesn’t make autistic kids’ lives easier, it makes the parents’ lives easier, because now they won’t have to listen to their child telling them that they’re in pain. Your child is upset and hurting, but it’s too “hard/stressful” for you to acknowledge and help them.

WE ARE NOT AN ANNOYANCE OR A BURDEN. WE ARE YOUR CHILDREN. WE ARE NOT A BROKEN PUZZLE THAT NEEDS TO BE PUT BACK TOGETHER.

We are people, we have thoughts and feelings, and we feel pain. But we keep it bottled up inside because showing love and care for your child is apparently too “difficult” for you.

(EDIT)

Holy shit this post blew up real quickly

Some things I do to help manage my depression after a manic episode:

Find a good audiobook to listen to so i don't have to waste energy actually reading

Limit my time on social media

Let myself indulge in video games when I'm off work

Always have frozen foods for any meal in the freezer. I have pancakes and these honey meat and cheese crescent rolls I made for breakfast. I have random staples for other meals like diced cooked chicken, different types of veggies, mini potstickers, egg rolls, a pizza, etc

Stay stocked up with all sorts of soups. Sometimes a hot bowl of nutritious soup will set me right for an hour or so

Stretch in the morning and try to have a sip of water after

Use a water flosser and mouth wash when I don't want to brush my teeth

I like to make pasta sauce in bulk and freeze it so I always have fresh pasta sauce on hand

I make indulgent dessert teas with way too much sugar and chocolate

Make myself do a single chore a day no matter how awful it is. I sometimes cry the entire time even. Just 1 though dealers choice. I usually make the bed or do a load of laundry if I'm out of underwear

Blast music

If I feel the need to hurt myself, I do an intense workout instead

Sit in a small, dark room with a soft blanket and let myself be angry and sad and cry and kick and yell. I find being able to get the emotions out like this helps me a lot

Go to bed early and sleep in a bit

Play games on my phone instead of doomscrolling

Make myself have a glass of water in between other drinks so I can at least be semi hydrated. I get dehydrated very easy and it makes my mental worse

Give myself sweet treats as rewards. Things I normally wouldn't ever get

Go sit by the water and watch the snails or crabs walk around

Everyone is different so these things may or may not help you and that's ok. I'm just sharing things that help me. Some definitely take a lot of energy to do and I've found that pushing myself a little more every day helps me recover faster as long as it's paired with plenty of sleep and rest otherwise.

Oh! Aiden now see Aiden old rb is poof and now Aiden need make define.

Ok so

Level 1: low support need, can do most/all basic thing by self

Level 2: medium support need, can do some thing by self but maybe need help with basic thing or have hard basic thing

Level 3: high support need, not able do most/all basic thing by self or have many many hard basic thing

Person able be between level!

Me on the weekly 🤧

I don’t mean to be promoting this but I want this...

“i just had a realization. the first time i had anorexia– the worst time– i lost 15 pounds monthly, just by eating 800 calories and doing weight lifting daily. 15 pounds a month. i went from 143lbs to 93lbs in just a week over 3 months. i didnt even do all the crazy things i do now, and the weight still melted off. and thinking back, i realized, starvation is not the answer.

it’s consistency.”

—my late night thoughts🌿

accommodations i’ve had approved as an autistic college student

helloooo today i finally had a meeting with the disability office and have accommodations after 2 years of being in college without them. im autistic and have cptsd/dissociative issues and had a hard time finding what was even available to me to request for accommodations so i wanted to make a list to help anyone else who might be having trouble.

• Priority registration

i get to register for classes earlier each term to make sure i can create schedules that’ll work for my routine

• Extended time on assignments

self explanatory i think? was also offered extended time on tests or a separate room to take them but testing isnt where i struggle

• Flexible attendance

as long as i email beforehand i dont have to stick as strictly to professors attendance policies

• Alternative formats

if i buy a physical textbook i can request the ebook/pdf/audiobook for free to have multiple methods of studying depending on what works for me on a given day

• Note taking

allowed to audio record class and send to a service called messenger pigeon who will give me a transcript of the class and professional notes based on it

• Access to lecture notes

able to access professors lecture notes prior to class/instruction

• Devices

allowed to have phone/ipad/laptop for social buffering and notes in classes that may have policies against electronics

• Flexible participation

no cold calling, option to work alone for group projects/assignments, not required to present in front of class

if anyone has any questions lmk these are just what i have been able to get at my school so far! hope it helps

edit: this is blowing up so fellow autistics, students, language nerds, etc pls be my mutual i want friends lol my dms are also open any time !!

Reposting because I wanna watch a few of them 😁💕

Here’s a list of miscellaneous children’s shows with links to full episodes for whenever you wish to watch them!

𐐪𐑂 Strawberry Shortcake (2003)

𐐪𐑂 Bluey

𐐪𐑂 My Little Pony: Friendship is Magic

𐐪𐑂 Batman: The Animated Series

𐐪𐑂 My Friend Rabbit

𐐪𐑂 Care Bears (1985)

𐐪𐑂 Care Bears: Unlock the Magic

𐐪𐑂 Rupert

𐐪𐑂 Maggie and the Ferocious Beast

𐐪𐑂 Miss Spider’s Sunny Patch Friends

𐐪𐑂 Little Bear

𐐪𐑂 Rolie Polie Olie

𐐪𐑂 Babar

𐐪𐑂 64 Zoo Lane

𐐪𐑂 The Upside Down Show

𐐪𐑂 Rubberdubbers

𐐪𐑂 Monster High (G1)

𐐪𐑂 Monster High (G3)

𐐪𐑂 Ruby Gloom

𐐪𐑂 Super Mario Brothers Super Show

𐐪𐑂 Growing Up Creepie

𐐪𐑂 Tutenstein

𐐪𐑂 The Magic School Bus

𐐪𐑂 Angelina Ballerina

𐐪𐑂 Moomin (1990)

𐐪𐑂 Whisker Haven: Tales with the Palace Pets

𐐪𐑂 Enchantimals: Tales from Everwilde

𐐪𐑂 Catch! Teenieping

𐐪𐑂 Onegai! My Melody

𐐪𐑂 Little Twin Stars

𐐪𐑂 Sugarbunnies

𐐪𐑂 Calico Critters