the idea that meds/therapy can’t fix problems caused by situational/societal issues can coexist with the idea that meds and therapy can be very helpful for many people and shouldn’t be demonized or presented as useless for risk of scaring people away that might really benefit
It is still a balance of trying to let go and not be rigid despite knowing this. I am not expecting to reach perfection, but just getting through every day, a day at a time, and knowing that bending is okay.
I think people need to get better at saying “maybe, maybe not” or “do I really need an answer?” when faced with uncertainty. this is something that gets taught to people with OCD, but I think the masses would benefit
“what kind of attraction am I feeling?” would it be the end of the world if that question didn’t have an answer?
“am I allowed to identify as x when I’m not sure if it applies to me?” maybe! who cares!
literally. you can apply the “fuck around and find out” method to anything
continuously feeling the need to hunt for answers is going to eat you up inside. take it from me. your life gets so much easier when you let yourself be unsure
this is important! chronically ill people get a lot of shit from healthy people and this could be avoided if everyone knew a little more about chronic illnesses in general so i’ve made a list of things healthy people (and newly chronically ill people) can read in order to know more about chronic illness and how it affects our lives!
some general information and must-reads:
the spoon theory (aka: why we call ourselves “spoonies”)
a sudden illness - laura hillenbrand
young and disabled by rachel anne
harmful tropes in literature
13 things people with chronic illnesses want you to know
a blog by people with chronic conditions
brief explanations of some chronic illnesses:
chronic fatigue syndrome (ME)
crohn’s disease
fibromyalgia + AMPS
ehlers-danlos syndrome - hypermobility type
ehlers-danlos syndrome - all types
CRPS/RSD (complex regional pain syndrome
IBD (inflammatory bowel disease)
POTS (postural orthostatic tachycardia syndrome)
dysautonomia
rheumatoid arthritis
lupus
autoimmune diseases
hashimoto’s disease
addison’s disease
endometriosis
depression (most people with chronic illnesses develop depression)
anxiety
bipolar disorder
and i’m running out of spoons but there are many, many more so spoonies, feel free to reblog add some if you want!
things to keep in mind:
although it says in many descriptions that most people who are diagnosed are over a certain age, anyone at any age can develop a chronic illness, and many are teenagers or even children. don’t tell a chronically ill person that we are “too young to be this sick” because it’s an ignorant thing to say and it’s harmful to us.
many chronic illnesses are invisible illnesses, which means that you cannot tell that a person is sick just by looking at them. never say to a chronically ill person that we “don’t look sick” because it is harmful and annoying, even if you mean well.
some spoonies need to use wheelchairs, canes, or other forms of assistance/ accommodations, so please never express doubt that a person might need this assistance. it’s impolite and insensitive. just because someone looks perfectly fine doesn’t mean that they don’t have a chronic illness that requires the use of a wheelchair or other assistance.
many chronic illnesses aren’t terminal but that doesn’t mean that they aren’t a real problem. chronic illnesses are robbing us of their normal lives and we are living in pain because there is so much that doctors still don’t know about chronic illnesses. many spoonies have had doctors look us in the eyes and say “i don’t know how to help you” because there is so much research that needs to be done and there isn’t enough funding! so donate to organizations and hospitals who are raising money for research!
thank you for reading this! please reblog and spread awareness! thank you!
The memory issues ADHD causes are some of the scarier and more frustrating parts of living with it - so here’s a set of reaction doodles that all my fellow ADHD peeps are welcome to use whenever anybody decides to comment on your forgetfulness ^
I'm in a support group for queer adults with disabilities (before I joined i didn't even know there *were* groups for that overlap, it's amazing and I love it) and we had our digital meeting on Monday. I shared your most recent flag update, where you had moved the new version to the public domain. Especially since we were talking about the ADA and its anniversary, it was very fitting. Everyone really liked it! Several people commented about the symbolism, in particular. So, just letting you know of some responses from outside tumblr. Thank you for putting it out there!
Thank you!
(Confession: At the time you first sent me this ask, the new version of the flag was not yet in the Public Domain. But it is, now! 🏴🎇🏴)
Shamelessly plugging the new version, again – especially since I want it to eclipse the old one:
To the extent possible under law, Ann Magill has waived all copyright and related or neighboring rights to Visually Safe Disability Pride Flag. This work is published from: United States.
And for those who want detailed ‘specs’:
The ratio of overall breadth to overall length is 3 to 4. The ratio of the flag’s overall length to the width of each stripe is 10 to 1 (So the ratio of the overall length to the width of the combined stripes is 2 to 1).
The Hexadecimal codes for each of the colors are:
The Field: #585858
The Red: #CF7280
The Yellow: #EEDF77
The White: #E9E9E9
The Blue: #7AC1E0
The Green: #3AAF7D
Now, as to the symbolism: in the original flag, the zigzags were meant to represent “navigating around barriers.” But instead, they were the barrier – so they were removed.
So let me put the story of the new symbolism into words – here and now– and thereby bring it into being:
The Black, as it was from the beginning, represents rage and mourning for those who’ve suffered violence and abuse because of their disabilities.
The five colors, in order from left to right, represent bodily disability, neurodivergent disabilities, invisible and/or undiagnosed disabilities (always in the center, because any disability can be invisible at any time), mental illness/emotional disabilities, and sensory disabilities.
The colored band starts at the top of the hoist, which is a starting place of honor, and ends at the fly, which represents moving outward into the world.
Walls and locked doors (behind which Disabled People have been hidden for too long) are right angles, and square. And so the colored band is a diagonal that cuts across those right angles, in defiance.
The five stripes are parallel, to represent our solidarity.
There! How’s that?
THIS IS NOT GOING TO APPLY TO EVERYONE!!! this is my own personal experience. mental illness isn't a one size fits all, i'm not claiming to be an expert or know what everyone's mania feels like, this is just what i've experienced
increased irritability
increased energy
change in appetite, not feeling hungry for days and then becoming ravenous
frequent sensory overload
oversensitivity
changes in sleep pattern, sleeping only 3-4 hours or shifting to sleeping more during the day and being awake all night
noticeable increase in productivity, that might start out as good, but you notice yourself being hyper fixated and jumping from several different projects
increase in impulsivity
feeling like you've lost control over yourself and your actions
paranoia
intrusive thoughts
nightmares
talking a lot, rambling, going on long rants
a feeling like you're watching yourself on a screen, like someone else took over your body and you're watching from the outside as they live your life
being aware you're making bad choices or that you are being reckless but not caring or being able to stop
dissociation
impulse purchases and reckless spending
reckless driving
impulse to change appearance or alter your image that can feel like a NEED if it isn't done immediately (for me this manifests in my hair, like cutting it or changing the color at 3 am. it also used to be comorbid with my eating disorder, which led to extreme fasting to try and lose weight)
feeling like you can accomplish things you couldn't normally do, feeling powerful, inflated ego and sense of self. i sometimes would think i was invincible and that nothing could hurt me and tried to act on it to prove it
increase in libido
risky sexual behavior
heightened emotions, everything feels larger than life, the highs feel like they'll never end and the lows feel like the end of the world
for myself this was only in extreme cases, but visual or auditory hallucinations. i've only had visual hallucinations a couple times, but when things got really bad, i would hear things that weren't there, or hear people calling me when i was all alone
feeling like thoughts are racing and you can't stop them, feeling like everything is loud and you're being pulled in a million directions
friends and family noticing uncharacteristic behavior, cutting people off, becoming VERY irritable, or showing too much affection in a way that isn't normal for you
and, inevitably, when it ends: The Big Crash. the depressive episode after that knocks you out
There’s a big problem in the autistic community we need to address
I am a semi speaking autistic with high support needs, when strangers see me, they know I’m autistic.
I’ve often seen fully speaking autistics refer to me and other autistics like me as “just stereotypes”
But I’m not just a stereotype, and neither are other autistics like me.
We deserve to be seen too, we deserve to be seen as people with our own personalities.
Please don’t forget us
(Absolutely ok to rb, please spread this around)
Displaying “scary” symptoms of mental illness
Being diagnosed with multiple disorders
Having one or various personality disorders
Being diagnosed with NPD, BPD, or ASPD
Having very low empathy, or no empathy
Having symptoms that cause anger, emptiness, or paranoia
Having triggers or “strange” personal boundaries
Needing extra help or accommodations
Having intrusive thoughts about upsetting or scary topics
somewhere around 60% of bipolarians are unemployed, and bipolar disorder is the sixth leading cause of disability in the world so here is a reminder that youre not alone. your worth is inherent and not linked to how well you can do a job. you have worth because you are alive not because you are able to produce labor for someone else. happy disability pride month to all the bipolarians who don’t or can’t have a job. I’m proud of you.
and for those who do work, 88% of bipolarians surveyed said that bipolar disorder affected their ability to perform at work, so if you work and struggle, here is a reminder that you’re not alone. I recognize the struggles you face, from those caused directly by your illness, to discrimination, to working hard to appear “normal,” your efforts dont go unnoticed. your worth isnt defined by how well you do your job, either. happy disability pride month to all the bipolarians who struggle through their work but still manage to get it done. I’m proud of you, too.