if you’re a mentally ill adult, especially if you’re psychotic or have bipolar, i highly recommend you look into getting a psychiatric advance directive. basically they’re a form you can fill out where you can specify what kind of treatment you want and don’t want in the case that you ever get legally declared incompetent. normally, getting declared incompetent means that psychiatrists take away your right to make decisions about your mental health care. for example, they can force you to take medications you don’t want or institutionalize you longterm without your consent. also the state appoints someone they choose to legally “consent” in your place.
what a psychiatric advance directive does is put limits on what the psychiatrists assigned to you can do. you can appoint your own person to be your legal representative, someone you trust who knows you and cares about you. you can also specify what hospitals you don’t want to be sent to or what doctors you don’t want to see or medications you don’t want to take or whether or not you consent to electroconvulsive treatment. you can also say what you do want, like i put down that they decided to institutionalize me, i wanted it to be at a specific psych ward i’d already been to and had a not terrible time at. and now, if i ever get declared incompetent, psychiatrists are legally not allowed to put me back on the meds that gave me a seizure.
nobody wants to be legally declared incompetent. it’s really scary to think about, but it does happen, especially to people with psychosis or bipolar disorder. it’s better to have legal safeguards in place ahead of time and not need them than to get declared incompetent and not have an advance directive
this is important! chronically ill people get a lot of shit from healthy people and this could be avoided if everyone knew a little more about chronic illnesses in general so i’ve made a list of things healthy people (and newly chronically ill people) can read in order to know more about chronic illness and how it affects our lives!
some general information and must-reads:
the spoon theory (aka: why we call ourselves “spoonies”)
a sudden illness - laura hillenbrand
young and disabled by rachel anne
harmful tropes in literature
13 things people with chronic illnesses want you to know
a blog by people with chronic conditions
brief explanations of some chronic illnesses:
chronic fatigue syndrome (ME)
crohn’s disease
fibromyalgia + AMPS
ehlers-danlos syndrome - hypermobility type
ehlers-danlos syndrome - all types
CRPS/RSD (complex regional pain syndrome
IBD (inflammatory bowel disease)
POTS (postural orthostatic tachycardia syndrome)
dysautonomia
rheumatoid arthritis
lupus
autoimmune diseases
hashimoto’s disease
addison’s disease
endometriosis
depression (most people with chronic illnesses develop depression)
anxiety
bipolar disorder
and i’m running out of spoons but there are many, many more so spoonies, feel free to reblog add some if you want!
things to keep in mind:
although it says in many descriptions that most people who are diagnosed are over a certain age, anyone at any age can develop a chronic illness, and many are teenagers or even children. don’t tell a chronically ill person that we are “too young to be this sick” because it’s an ignorant thing to say and it’s harmful to us.
many chronic illnesses are invisible illnesses, which means that you cannot tell that a person is sick just by looking at them. never say to a chronically ill person that we “don’t look sick” because it is harmful and annoying, even if you mean well.
some spoonies need to use wheelchairs, canes, or other forms of assistance/ accommodations, so please never express doubt that a person might need this assistance. it’s impolite and insensitive. just because someone looks perfectly fine doesn’t mean that they don’t have a chronic illness that requires the use of a wheelchair or other assistance.
many chronic illnesses aren’t terminal but that doesn’t mean that they aren’t a real problem. chronic illnesses are robbing us of their normal lives and we are living in pain because there is so much that doctors still don’t know about chronic illnesses. many spoonies have had doctors look us in the eyes and say “i don’t know how to help you” because there is so much research that needs to be done and there isn’t enough funding! so donate to organizations and hospitals who are raising money for research!
thank you for reading this! please reblog and spread awareness! thank you!
this is so petty but i hate how bipolar is treated like one of the big scary disorders but never talked about as one. people on here will talk about ending the demonization of ‘scary disorders’ like personally disorders and schizophrenia and did but not include bipolar despite being seen and treated by the general public as a ‘scary’ disorder. I had a mental health advocate tell me bipolar doesn’t count because it’s a mood disorder and therefor treated the same as gad and depression and i just. have you met a bipolar? listened to our symptoms? have you listened to doctors talk about us? our abuse rates? our suicide and alcoholism rates? the distain the public has for us? just include us in your positivity and advocacy please. im not asking for much
Some rando: You should think about stopping your prescription
Me: My pills make me not want to die tho
They: You shouldn’t want to die, that’s not normal
Me: Yeah that’s why I’m taking my pills
in all seriousness it’s very alienating knowing theres Something Wrong With You. like seeing your mental illness come through in your behaviour and thought processes and knowing it’s irrational and unhealthy, knowing other people are reading you as weird or stupid, and not being able to do anything about it is such a lonely experience
listen to me. thoughts do not have moral weight. a thought will never hurt anyone. the actions you take because of a thought can hurt yourself or other people, but the thought itself is powerless and there is no such thing as thought crime.
"but i have thoughts about being violent towards people! towards children! surely that makes me dangerous!" are you being violent? for real? with your actions? if not, then you are not actually hurting anyone
"but i have thoughts that are offensive and hurtful! they're bigoted, or they're horribly rude, or they're invalidating to others! i'm a horrible person." and what are you doing with those thoughts, exactly? are you taking bigoted actions, or saying those rude things, or taking steps to actually invalidate people? no? well then. no one is getting hurt. and in the meantime, if it really bothers you, doing things like helping unlearn your biases (both against minorities and just, like, against furries and theatre kids and shit) might help some of those thoughts go away, but sometimes you just get shitty thoughts.
"but i have horrific thoughts about sex!" are you hurting people. are you forcing people to do things they don't consent to. or are you just playing the upsetting possibility in your mind over and over again, and acting like that's even remotely the same thing?
thought. crime. is. not. real. OCD. is. hell. (and anything else that may cause intrusive thoughts.) but it does not define you. your thoughts will always, always come secondary to your actions. you're gonna be fine.
dam…….. that website “you feel like shit” (it’s like a questionnaire / troubleshooting guide for when you feel like shit) really works………………….. im not even all the way thru it and i even half-assed a lot of the suggestions and i already feel loads better
ive been wanting to take a swing at making this kind of thing for ages, and since im manic I figured i’d do it!
color explanation under the cut
Keep reading
prescribe me adderall or i will start cooking meth in my fucking bathroom you fucking psychiatrist
please dont use spoon theory terms unless you have physical disabilities / chronic pain/illness. the woman who came up with it used it as a metaphor for what it’s like to live with lupus, and as far as I know it’s not applicable to people who do not have physical disabilities or chronic pain/illness. if you do then carry on but otherwise please don’t.
shit, sorry, didn't know. that's my bad, i'll edit or delete my last stuff that used it. sorry!!